Share Your Story
Patient collaboration and the inclusion of patients’ considerations are essential to the delivery of team-based quality care. They positively impact outcomes and enhance safety.
Patient involvement is even more critical in the context of primary aldosteronism.
Because primary aldosteronism is under-diagnosed and under-treated, patients have to have a good understanding of their disease no matter how complex it may be; they have to find their way to Centers of Excellence to receive the care they need; and they have to leverage their health data to obtain the best possible management of their disease.
Why is sharing your story so important when it comes to primary aldosteronism?
- Since it is mistakenly considered rare, primary aldosteronism is only diagnosed in a small portion of the population. Hearing from you will help us advocate for proper recognition on behalf of the PA community.
- Since primary aldosteronism is mistakenly considered rare, hearing about your experience will help us advocate for making proper diagnosis and treatment available to all affected patients.
- Because primary aldosteronism is mistakenly considered rare, resources are lacking to advance its understanding and treatment. Sharing your story will help us advocate for accelerated research, and it will help inform aspects of the disease which have been neglected to-date.
- On a personal level, hearing your story will bring comfort and inspiration to those who struggle to get diagnosed or have a diagnosis and are isolated because they were erroneously told their disease is rare.
Whether you are a patient, a caregiver, a friend or family member, thank you for taking the time to fill out the form below, for raising your hand and for empowering others to do the same.