The Primary Aldosteronism Foundation is committed to advancing standards of care for affected patients through proper diagnosis and treatment, actionable research and inclusive collaboration.
To achieve its mission, the Foundation focuses on areas at the intersection of research, diagnosis, treatment and patient-centered solutions.
In its advocacy role, the Foundation acts as the voice of patients to:
- Raise primary aldosteronism to the top of the public health agenda,
- Help identify patients with unmet medical needs, and
- Foster the inclusion of patients’ lived experience in research and policies.
In its catalyst role, the Foundation promotes accelerated research through funding proportional to the number of affected patients to fill the knowledge gap with regard to aldosterone and the pathogenesis of primary aldosteronism, and to find effective ways of diagnosing and treating the disease at scale.
In its knowledge translation role, the Foundation’s objectives include:
- Promoting the implementation of care models proven successful for diseases with issues similar to those affecting primary aldosteronism;
- Improving quality of care through communities of practice and knowledge translation;
- Fostering collaborative work, and disseminating actionable information to patients and healthcare professionals.