Privacy Policy

The Primary Aldosteronism Foundation (“the Foundation”) takes all precautionary measures to protect the privacy interests and preferences of those who visit its website. We are committed to fully disclose what information we collect, how it is used, and how you can opt-out if you so choose.

Personal Information We Collect

When you visit our website, we collect information you provide directly to us. For example, we collect information when you subscribe, participate in any interactive features of our website, fill out a form, request support or otherwise communicate with us. The types of information we may collect include your name, email address, postal address, and other contact or identifying information you choose to provide. If you Share Your Story about your experience with primary aldosteronism, we retain the information you provide, and may post it to our website with your permission to help other patients with the disease.

How We Use Your Personal Information

We only use your personal information to communicate with you about the Foundation or to answer your questions. If you sign our Open Letter, we may use your name along with the name of others who have signed the letter to raise awareness about primary aldosteronism and the Foundation’s priorities stated in the letter.

The Foundation does not provide any third party with your email address or other contact information without your express written approval.

We do not share personal information you have provided to us without your consent, unless:

  • Doing so is appropriate to carry out your own request;
  • Doing so is needed to enforce our legal agreements, or is legally required;
  • Doing so is needed to detect, prevent or address fraud, security or technical issues.

The Foundation employs industry standard techniques to protect personally identifiable information from loss, misuse, and unauthorized access, disclosure, alteration, or destruction.

We Do Not Collect Billing Information

We do not collect credit card information, since donations are handled through Paypal which is a third-party website. However, if you make a donation to the Foundation, we may contact you to thank you for your gift, or to inform you of opportunities which may be of interest to you.

Browsing Data We Collect and Cookies

We collect anonymous (non-personally identifiable) data from every visitor to the website. For example, we collect information from web requests, the data sent in response to such requests, the Internet Protocol address, the browser type, the browser language, and a timestamp for the request. We may use cookies to this effect.

Cookies are small data files stored on your hard drive or in your device memory that help us to improve our website and your experience, see which areas and features of our website are popular and count visits. We may also collect information using web beacons (also known as “tracking pixels”). Web beacons are electronic images that may be used in our services or emails to track visits or understand usage and campaign effectiveness.

How We Use Your Browsing Data

Your browsing data is collected for the sole purpose of improving our website and better serve our audiences. The Foundation does not trade or share this information with anyone nor does it send mailings on behalf of other organizations.

We may ask third parties to assist the Foundation with analytics services. These third parties may use cookies, web beacons and other technologies to collect non-personal information about your use of our services including your IP address, web browser, pages viewed, time spent on pages, links clicked and conversion information.


This website is not intended for children under the age of 13. The Foundation does not knowingly collect personally identifiable information from any person in this age group.

EU General Data Protection Regulation (GDPR)

Our servers are located in the United States. EU/EEA residents who visit the Foundation’s website have rights which may be subject to European data privacy laws such as the GDPR. To exercise these rights or raise a complaint on how the Foundation handles your personal information, please contact us at and we will investigate the matter promptly.

Change and Removal of Personal Data

If you wish to view, change or remove your personal data from our server, website or database, you may contact us at Once it has been confirmed that you are the owner of the email address and that you have made the request yourself, we will promptly remove any personal data associated with the email address you provided.

Opt-Out, Communication Preferences

If you wish to opt-out of future communications from us, you may contact us at and we will promptly handle your request. We do not currently send regular or periodic communications, such as medical updates, a newsletter, or requests for donations. If we begin sending these communications in the future, we will provide you with the ability to opt-out or change your communication preferences.

Changes to this Privacy Policy

The Foundation may amend this Privacy Policy from time to time. Use of information currently collected is subject to the Privacy Policy in effect at the time such information is used. Any changes to this Privacy Policy will be posted on this web page together with the date these changes take effect.

Thank you for reviewing the Foundation’s Privacy Policy. Should you have any question regarding this policy or your use of our website, please contact us: